R&D Reference Number Project Short title Project Full title Recruitment end date
1704402 Lemtrada Pass OBS13434 A prospective, multicenter, observational, post-authorization safety study to evaluate the long term safety profile of Lemtrada (Alemtuzumab) treatment in patients with relapsing forms of multiple sclerosis (RMS) 30/07/2018
1611328 UK MS Register The UK Multiple Sclerosis Register 30/11/2018
1807655 Vision in Parkinson’s Disease Disruption of visual processing in Parkinson’s Disease 18/01/2019
1504080 ESTEEM Study to collect information on DMF utilization and safety A Multicenter, Global, Observational Study to Collect Information on Safety and to Document the Drug Utilization of Tecfidera™ (Dimethyl Fumarate) When used in Routine Medical Practice in the Treatment of Multiple Sclerosis (ESTEEM) 01/02/2019
1810693 PKGReg An observational-based registry of baseline PKG in Parkinson’s disease 31/08/2019
1806645 215MS202 Efficacy & Safety of BIIB033 as an Add-on Therapy in RMS A Multicenter, Randomized, Double-Blind, Placebo-Controlled Study in Subjects With Relapsing Multiple Sclerosis to Evaluate the Efficacy and Safety of BIIB033 as an Add-On Therapy to Anti-Inflammatory Disease-Modifying Therapies (AFFINITY) 31/10/2019
1702382 DEME 4149 A Blinded Long-term Extension Study to Evaluate the Safety and Efficacy of Pioglitazone(AD-4833 Sustained Release 0.8 mg Daily) to Slow the Progression of Cognitive Decline inSubjects Who Have Completed the AD-4833/TOMM40_301 Study With Diagnosis of MildCognitive Impairment Due to Alzheimer Disease 03/11/2019
1009437 Cognitive and oculomotor function in Parkinsons Disease PARTICIPANT INFORMATION SHEET FOR EYE TRACKING STUDIES IN PEOPLE WITH PARKINSONS 30/07/2020
1808671 DexEnceph 1.0 DexEnceph: A pragmatic, randomised, controlled, observer­blind trial comparing clinical outcomes in adults who receive
dexamethasone alongside standard treatment versus standard
treatment alone for Herpes Simplex Virus encephalitis.
1204637 Neurological conditions and oncology: immunology and interactions Neurological conditions and oncology: immunology and interactions 01/09/2021
1805636 MS-STAT2 A phase 3 randomised, double blind, clinical trial investigating the effectiveness of repurposed simvastatin compared to placebo, in secondary progressive multiple sclerosis, in slowing the progression of disability 30/06/2023
1704406 Parkinson’s Families Project (PFP) Parkinson’s Families Project (PFP) 01/03/2027
1310851 Myotonic Dystrophy Registry United Kingdom National Registry for Myotonic Dystrophy 30/08/2055